Bill 165 explained in plain English
Sickle Cell and Thalassemia Care Ontario Act, 2011
Ontario legislature bill summary, status, timeline, sponsor, votes, and official sources.
At a glance
Official Legislative Assembly of Ontario snapshot for 39th Parliament, 2nd Session. Representative vote breakdowns appear when the Assembly publishes an Ayes and Nays page for the bill.
Our plain-language take, written for civic education.
Source: By PoliticalData.ca
Bill 165, the Sickle Cell and Thalassemia Care Ontario Act, 2011, creates a corporation to improve care for these disorders and designates June 19th as an awareness day.
This bill establishes Sickle Cell and Thalassemia Care Ontario, a non-profit corporation, to improve healthcare coordination and quality for individuals with sickle cell or thalassemia disorders. It also proclaims June 19th each year as Sickle Cell and Thalassemia Awareness Day.
- Establishes Sickle Cell and Thalassemia Care Ontario as a corporation without share capital.
- Outlines the objects of the Corporation, including improving healthcare coordination, promoting awareness, assisting patients and caregivers, advocating for patients, encouraging genetic testing, facilitating access to genetic counseling, monitoring disorder prevalence, and collaborating with other governments.
- Specifies the composition of the Corporation's board of directors, appointed by the Lieutenant Governor in Council.
- Requires the Corporation to appoint auditors and provide them with an annual report.
- Grants the Minister the power to audit the Corporation's affairs.
- Proclaims June 19th of each year as Sickle Cell and Thalassemia Awareness Day.
- States that the Act comes into force on the day it receives Royal Assent.
- Provides the short title of the Act.
- Individuals with sickle cell disorders
- Individuals with thalassemia disorders
- Caregivers of individuals with sickle cell or thalassemia disorders
- Health professionals
- Hospitals
- Research institutions
- Advocacy groups
- The public
- The Government of Canada
- Provincial and territorial governments in Canada
- Members of the Legislative Assembly of Ontario
- The Minister of Health and Long-Term Care (or equivalent)
- The Lieutenant Governor in Council
- The Corporation has a duty to improve healthcare coordination and quality for individuals with sickle cell or thalassemia disorders.
- The Corporation has a duty to promote public awareness and education about these disorders.
- The Corporation must assist patients and caregivers in accessing healthcare and social support resources.
- The Corporation must advocate on behalf of affected individuals.
- The Corporation is encouraged to promote genetic testing and counseling.
- The Corporation must monitor the prevalence of these disorders and assess healthcare service sufficiency.
- The Corporation must provide an annual report to the Minister.
- The Minister must lay the annual report before the Legislative Assembly.
- The Act comes into force on the day it receives Royal Assent.
- June 19th is proclaimed as Sickle Cell and Thalassemia Awareness Day each year.
- The Corporation must appoint auditors licensed under the Public Accounting Act, 2004, which may incur costs for the Corporation.
- The bill does not specify the exact composition or appointment process for the board of directors beyond a minimum and maximum number of members and appointment by the Lieutenant Governor in Council.
- The bill does not detail the specific funding mechanisms or budget for Sickle Cell and Thalassemia Care Ontario.
- The bill does not specify how the Corporation will be implemented or its operational details.
- The bill does not detail the penalties for non-compliance, if any, as it focuses on establishing a corporation and an awareness day.
This Act creates a new non-profit corporation and establishes an annual awareness day.
This Act may assign or transfer responsibility for the administration of the Sickle Cell and Thalassemia Care Ontario Act, 2011 to a member of the Executive Council.
Source: Section 1
The Corporation must appoint auditors licensed under this Act.
Source: Section 5 (1)
Generated using AI from official bill text. Not legal advice. It is written by PoliticalData.ca for civic education, automatically checked and spot-reviewed before publishing.
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Vote Summary
This bill is still active. We only show vote counts after the legislature publishes a recorded division.
No published representative vote breakdown
This bill is still moving through the process. When a recorded division is published, representative positions can be listed here.
Official sources
Status, sponsor, votes, and timeline on this page are drawn from these official legislative sources and public records. Each summary above is attributed to its own source.
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