Bill 129 explained in plain English
Rare Disease Strategy Act, 2023
Ontario legislature bill summary, status, timeline, sponsor, votes, and official sources.
At a glance
Official Legislative Assembly of Ontario snapshot for 43rd Parliament, 1st Session. Representative vote breakdowns appear when the Assembly publishes an Ayes and Nays page for the bill.
Our plain-language take, written for civic education.
Source: By PoliticalData.ca
The Rare Disease Strategy Act, 2023 requires the Ontario government to implement recommendations from a 2017 report on rare diseases and to provide public updates on their progress.
This Act, called the Rare Disease Strategy Act, 2023, amends the Health Protection and Promotion Act. It requires the Ontario government to implement the recommendations from the Rare Diseases Working Group Report, dated March 10, 2017, as soon as is practical. Additionally, six months after the Act comes into force, and every six months after that until all recommendations are implemented, the government must post an update on its website detailing which recommendations have been implemented and what steps are being taken for any remaining ones. The Act comes into force on the day it receives Royal Assent.
- Amends the Health Protection and Promotion Act.
- Requires the Government of Ontario to implement recommendations from the Rare Diseases Working Group Report (dated March 10, 2017) as soon as is practicable.
- Requires the Government of Ontario to post updates every six months on its website regarding the implementation of these recommendations, starting six months after the Act comes into force and continuing until all recommendations are implemented.
- Specifies that the Act comes into force on the day it receives Royal Assent.
- The Government of Ontario
- Individuals with rare diseases and their families (indirectly, through the implementation of a rare disease strategy)
- The public (through website updates)
- The Government of Ontario has an obligation to implement the recommendations of the Rare Diseases Working Group Report.
- The Government of Ontario has an obligation to post public updates on the implementation status of the recommendations.
- The Act comes into force on the day it receives Royal Assent.
- Website updates are required to begin six months after this section comes into force, and continue every six months thereafter until all recommendations are implemented.
- The bill does not specify what the recommendations in the Rare Diseases Working Group Report are.
- The bill does not define 'as soon as is practicable'.
- The bill does not detail the content or format of the website updates beyond requiring information on implemented recommendations and steps being taken for remaining ones.
- The bill does not specify the exact date the Rare Diseases Working Group Report was published, only the date mentioned within the bill text.
Adds a new section (20.1) that mandates the implementation of the Rare Diseases Working Group Report recommendations and requires public reporting on progress.
Source: Section 1
Generated using AI from official bill text. Not legal advice. It is written by PoliticalData.ca for civic education, automatically checked and spot-reviewed before publishing.
Official textProcess Snapshot
Vote Summary
This bill is still active. We only show vote counts after the legislature publishes a recorded division.
No published representative vote breakdown
This bill is still moving through the process. When a recorded division is published, representative positions can be listed here.
Official sources
Status, sponsor, votes, and timeline on this page are drawn from these official legislative sources and public records. Each summary above is attributed to its own source.
How this data is sourced